
|
|
![]() Burbia Blogs- added on 07/24/2008![]() The Luckiest Boy at Morse PoolIf you are allergic to saccharine, you best stop reading right here. I'm violating my usual standards for my writing, in which I aim more for salt-and-vinegar than vanilla-and-spice. ![]() Linda Keenan worked 7 years as a head writer/senior producer for various programs on CNN...read more But I make an exception for the mom I observed the other day at the pool (I've changed the name of the pool to protect her privacy), who had taken her son out on a sweltering day. By most measures, this boy of 10 or so would surely not be considered lucky. His disability was undeniable to anyone who looked his way. Few had the nerve to peer too closely. He was unable to speak, hunched over and twisted a bit, unable to move with any sort of economy. He was painfully thin, and I could imagine that getting him to swallow even one bite was a struggle for the boy's parents. What made him lucky in my mind was the mom he got, who showed such exquisite patience in the face of monumental challenges. This mom also made me see up close, for the first time, how the parents of the severely disabled face extreme isolation from other parents. I will freely admit that there are many things I assumed about this woman, and I didn't have any way to confirm them, without asking her directly, something I didn't want to do. She looked very strong, and after an hour or so of watching her lift her boy in and out of the water, I had to believe that her son's needs were responsible for all that muscle. She was roughly 40 years old, and wearing well-worn college-wear, and I began to imagine her as a former professional. Most of the women in this particular town are professionals or former professionals. This woman's career now looked to be in her arms, a gangly boy who couldn't talk, but could communicate the basics: discomfort, joy, and surely love. It is not easy to bring any young child to a pool; the vigilance gets a bit wearing. And though this boy was about 10, she had to handle him and hold him up as you would a toddler. Not once over the afternoon did she ever betray the exhaustion she must feel. Mostly, she seemed intent on giving her son every young boy's due: a splash in the pool on a 90 degree day. And she achieved that. But it must have been a lonely endeavor. No one talked to her. While everyone else was prattling on to each other, comparing kiddie milestones ("can Liam spell his name? Caitlin can't"), whining about the trivial ("Crocs, dangerous or not?"), no one tried to pull her into the conversation. We can't even fathom what the milestones are for her, what she can realistically hope for her son's future, the fear she must have about what that future might hold when she isn't around to care for him. I shouldn't say no one talked to her. I spoke to her for a moment because I talk to every one, like a crazy person, or a former professional bored out of her mind at the kiddie pool. Her son started to grab toys and one thing that looked like a toy was my enormous plastic Big Gulp-sized iced-coffee. I joked to her, "that's the one thing he can't have. Not my coffee." And she laughed, and looked happy to share a joke. Still, a friend once described me as being able to interview a paper bag (a nice way to say I'm a hare-brained chatterbox, I think). And even I was stumped on how to start up a proper back-and-forth conversation. I'm trying to imagine what this mom's reaction would be to this piece and I'm guessing she would be angry, saying that all I saw was her son's disabilities, all I saw were the challenges he faces as opposed to the things he gives back to her family in love, and the achievements he makes in his own way. I'm convinced that's what she'd say. Lucky boy, indeed. ...read more blogs markbecker ??Thu, 07/24/2008 ?? 10:32
What a beautiful column. I - submitted by Anonymous on 07/24/2008
What a beautiful column. I think from now on I will make more of an effort to be outgoing in situations like these. Such a nice piece. I almost - submitted by Anonymous on 07/24/2008
Such a nice piece. I almost cried. It might've been the suntan lotion in my eye but it still counts. this is linda the writer - submitted by linda keenan on 07/25/2008
im going to try to talk to them as well. i found it hard because the small talk of parenthood is all about the average kid, right? and that's pretty much all people talk about at the pool. wow - submitted by Anonymous on 07/25/2008
As the parent of a special needs child, thanks for a great take on your observations at the pool. Don't be afraid to befriend moms who face unexpected challenges in life with strength & grace. Remember, they may also be parenting typical children-juggling two different worlds with different experiences in social acceptance. Take the time to get to know this special mom--you probably have more in common with her/her family than you think. Special kids, special moms, special friendships can help keep the big picture clear, Little Johnny's playing time in his last game may just not be that important after all--it takes a village to keep us all sane. Wanna say this is one fo - submitted by Anonymous on 07/26/2008
Wanna say this is one fo the best personal pieces on parents dealing with handicapped children I've read. It moved me to tears. Thanks you. Lovely piece. I have one - submitted by Anonymous on 07/28/2008
Lovely piece. I have one child with special needs and one who is "normal," and their basic joys and challenges are exactly the same; the only difference is the scale. My special needs child is outgoing, my "normal" child is shy and they both worry about having friends and being popular. Everyone has some kind of special need; most of us don't wear it so everyone can see. Welcome people who are different into your life and you will be richly rewarded. special moms - submitted by Anonymous on 07/30/2008
Very well said "lovely piece. I have one." I have one of each as well and your comment is richly appreciated-very insightful as was the piece... I've often wondered what typical moms think about when they see me with just my special kid--great little window to their thoughts, not many share them. This brought tears to my - submitted by Anonymous on 08/29/2008
This brought tears to my eyes. Having a baby has to be one of the best things that has happened to me, but it has also left me very very lonely. The little interactions with other moms while I'm out and about make my day. That poor mom... I hope she has a good social network. I don't want to treat someone differently because they have a Special Needs Child, but I'll have to make a point of striking up a conversation or at least exchanging a smile. I tend do it with everyone anyway :) |
|